If you’re a reader of my blog, you know my daughter was born (full-term) with a long list of health problems. One of those health problems is a very rare lung disease called NEHI (Neuro Endocrine Hyperplasia of Infancy). She was diagnosed at two weeks after she wasn’t recovering from her pneumonia and they ended up sending us home with her on oxygen 24/7. We were ...
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…and best friends were made.
Aliceana and Buddy haven't had the best relationship so far. Buddy is annoyed by the crying, Aliceana is annoyed by the barking. Lately Aliceana has become pretty obsessed with Buddy. She loves watching him, if he scratches his ear or wags his tail she goes nuts. Buddy occasionally will sniff her, but normally he just walks away and pretends like she doesn't exist and that ...
Star Wars and Owls, oh my! (nursery decor)
The theme we came up with for our little girls nursery is a combination of Star Wars and owls. Before we were even thinking about trying for a little one we knew we wanted a Star Wars nursery. It started when I stumbled upon some adorable Star Wars prints on Etsy when I was planning our wedding. Once we found out we were having a little girl my husband suggested we ...
Dealing with gawkers (having a special needs child)
When you have a special needs child, you'll always get stared at and rude comments, and it's not always the easiest thing to deal with. After finally getting Aliceana home (on oxygen) we went on our first outing as a family the next morning to the local Farmer’s Market. We had only gotten to the first couple booths before a little boy started asking his mom about the oxygen and ...
Aliceana’s Journey Home: NICU Week 2
Days 7 and 8 were pretty uneventful, but still terribly hard to get through. The doctors’ plans for both days were to do nothing and wait. She was done with her course of antibiotics at least. On day 8 her nose cannula fell out of her nose and she desaturated again, they considered this her test off of oxygen and decided they would try again on Wednesday (3 ...
Aliceana’s Journey Home: NICU Week 1
It was pretty late Saturday night by the time we got to Meriter Hospital in Madison. When we pulled up and I got out of the car and went to the front desk the woman at the desk started telling me the directions to get to the triage. That’s how terribly I was walking at that point. We got to the NICU, which was so far away from the parking garage. Not very fun for me to ...
Trip to the orchard
Yesterday we went on our first family trip to our local orchard, called The Little Farmer. It's a great place to take kids as they have so many fun things for them to do. Aliceana is too little to truly enjoy it though. We still took the opportunity for a cute photo op! When we got there I had fun looking at all the cute animals, the goats thought my phone was ...
Hoorah, for our last home nurse visit!
Little Miss Aliceana last week. I haven’t posted about Aliceana’s whole story about being in the NICU yet, because it’s tough and when I wrote out what happened I think it was all too fresh and I was still feeling quite bitter about the whole situation, so I have quite a bit of editing to do before I want the world to hear that part of our ...
Aliceana’s Journey Home: Her first day
After I had Aliceana my husband and I got to hold her. I remember asking him if it hurt his hand to hold her (he had carpal tunnel surgery earlier in the week), and his response was “I don’t even care,” while he smiled down on her. My mom, Grandma, and Grandpa got to come see her that night, we still hadn’t told many people that I was in labor. I didn’t ...
Aliceana’s Journey Home: Labor
Three weeks and a few days ago I had my little girl, she's had quite the journey in the last few weeks. This is the first installment about her journey home. My swollen self on the 4th of July. It all started on the 4th of July. My mom had been telling everyone that my baby was going to be born on the 4th of July, and everyone ...
The 6 month bump
I haven't posted any bump pictures on here yet. I'm not one to over share about pregnancy things. My two biggest pregnancy pet peeves is people that over share ultrasound pictures and people that refer to their baby by it's name during their entire pregnancy. I don't know why, but those two things drive me nuts! I actually only take bump pictures because I have this adorable ...