2012 was a big year for my little family, but I’m so glad it’s over!! We’ve had lots of ups and downs along the way. Here’s a breakdown of our 2012. January: We finally let everyone know that we were having a baby. It turns out my mom had told everyone already, but it was nice not to have to hide being pregnant anymore! February: On Valentine’s day we had our big ...
Our Early Christmas Miracle
If you’re a reader of my blog, you know my daughter was born (full-term) with a long list of health problems. One of those health problems is a very rare lung disease called NEHI (Neuro Endocrine Hyperplasia of Infancy). She was diagnosed at two weeks after she wasn’t recovering from her pneumonia and they ended up sending us home with her on oxygen 24/7. We were ...
…and best friends were made.
Aliceana and Buddy haven't had the best relationship so far. Buddy is annoyed by the crying, Aliceana is annoyed by the barking. Lately Aliceana has become pretty obsessed with Buddy. She loves watching him, if he scratches his ear or wags his tail she goes nuts. Buddy occasionally will sniff her, but normally he just walks away and pretends like she doesn't exist and that ...
Dealing with gawkers (having a special needs child)
When you have a special needs child, you'll always get stared at and rude comments, and it's not always the easiest thing to deal with. After finally getting Aliceana home (on oxygen) we went on our first outing as a family the next morning to the local Farmer’s Market. We had only gotten to the first couple booths before a little boy started asking his mom about the oxygen and ...
Aliceana’s Journey Home: NICU Week 2
Days 7 and 8 were pretty uneventful, but still terribly hard to get through. The doctors’ plans for both days were to do nothing and wait. She was done with her course of antibiotics at least. On day 8 her nose cannula fell out of her nose and she desaturated again, they considered this her test off of oxygen and decided they would try again on Wednesday (3 ...
Aliceana’s Journey Home: NICU Week 1
It was pretty late Saturday night by the time we got to Meriter Hospital in Madison. When we pulled up and I got out of the car and went to the front desk the woman at the desk started telling me the directions to get to the triage. That’s how terribly I was walking at that point. We got to the NICU, which was so far away from the parking garage. Not very fun for me to ...
Hoorah, for our last home nurse visit!
Little Miss Aliceana last week. I haven’t posted about Aliceana’s whole story about being in the NICU yet, because it’s tough and when I wrote out what happened I think it was all too fresh and I was still feeling quite bitter about the whole situation, so I have quite a bit of editing to do before I want the world to hear that part of our ...
Aliceana’s Journey Home: Her first day
After I had Aliceana my husband and I got to hold her. I remember asking him if it hurt his hand to hold her (he had carpal tunnel surgery earlier in the week), and his response was “I don’t even care,” while he smiled down on her. My mom, Grandma, and Grandpa got to come see her that night, we still hadn’t told many people that I was in labor. I didn’t ...
My rock n’ roll wedding!
Our wedding was a very hands on DIY Rock and Roll theme, and it turned out just like we hoped it would. We met at a concert, and music really brought us together in the beginning of our relationship, so it only made sense to break out the chucks, guitars, and records. Here are the down and dirty details. My wedding came in at around $8000, because I did everything myself. We ...